罕见病患者的生活是怎样的?
让我们一起走近他们的世界吧~
参考文献:
默沙东诊疗手册(大众版)https://www.msdmanuals.cn/home/children-s-health-issues/connective-tissue-disorders-in-children/marfan-syndrome
中国法布雷并针疗专家共识(2021年版)https://guide.medlive.cn/guideline/23029
赛诺菲中国. https://mp.weixin.qq.com/s/qY6_3Q7vjVA_w59UEA7_6A
多发性硬化诊断和治疗中国专家共识(2018版)http://medi-guide.meditool.cn/ymtpdf/EDCFC134-AAB2-F71D-22B0-01CEEF5CFC54.pdf
RonB, Noam A, Pamela S, et al. Glioblastoma Multiforme, Diagnosis and Treatment;Recent Literature Review. Curr Med Chem.2017;24(27):3002-3009.
2021甘李研发日.https://www.ganlee.com.cn/2021randdday.html
Lassen,U., Mau-Sørensen, M., & Poulsen, H. S. (2014). Orphan drugs in glioblastomamultiforme: a review. Orphan Drugs: Research and Reviews, 4, 83-91.























